Behind The Sports Series: Muscle Movement Foundation, Rob DeMasi

Delaware Sports Blitz is excited to announce a new series we will be doing called Behind the Sports.

Untitled-1 copy.jpg

The Behind the Sports series is looking at men and women who prepare athletes for their best on and off the court ( SIDs, AD, educators, trainers and etc.). The series will also be looking at different careers in the sports field from media, operating an arena, tickets sales, public relations and etc.

This week we will be featuring several members of the Muscle Movement Foundation. As it says on their site “The MMF works to combat the detrimental effects of muscular dystrophy, ALS, and additional forms of muscle-related diseases, by way of physical, financial, and emotional accommodations.” The foundation works with a lot of high schools and colleges in the area and their athletic programs. The foundation uses sports in a way to shine a light on muscle diseases and MMF’s muscle champions.

First up in the series for the Muscle Movement Foundation is Rob DeMasi who is the Founder and President of the foundation.  As the President of the Muscle Movement Foundation some of DeMasi responsibilities are primary spokesperson for MMF, constructs policies and procedures, responsible for fundraising operations, recruiting donors, and attending fundraising functions.

DeMasi’s passion for sports and the beginning links of  the Muscle Movement Foundation started when he was at St.Marks High School where he was a three sport athlete ( wrestling, football and track). He was consistently nationally ranked in wrestling, the starting running back on the football team and he was an  academic all-state scholar in high school. In high school is where DeMasi started to have symptoms of an autoimmune disease called Myasthenia gravis but it took years to get it properly diagnosed.  In 2012, DeMasi started a blog where he would help connect fellow ” Muscle Champions”  and where he shared his own story living with a muscle disease.

DeMasi graduated with Cum Laude, B.S. in Behavioral Science and an Graduate Certificate in Nonprofit Management from Wilmington University. He also has been featured in their WilmU Magazine and was honored by the school with the First Distinguished Alumni Award Winner. DeMasi was also honored by Delaware Business Times with him being named Times 40 Under 40 Award Winner. The passion and hard work that Rob DeMasi brings to the Muscle Movement Foundation is evident in the lives of the foundation’s “Muscle Champions” they are changing.



Name the job and a brief summary of what it entails? 

DeMasi: Founder and President of the Muscle Movement Foundation. Oversees the entire organizational management of the organization. Primary spokesperson for the organization. Constructs policies and procedures, responsible for fundraising operations, recruiting donors, and attending fundraising functions. Develops programs and services and appoints personnel to specific internal roles. Acts as liaison to the board of directors.


How long have you been in this area of work?

DeMasi: Since 2012.


What interested you to get in this area of work?

DeMasi: Becoming involved in this area of work occurred naturally. Making the decision to transform a personal diagnosis of muscle disease into a calling to assist and inspire others is what initiated my interest. Finding purpose in my passion fueled my interest to create and grow the organization.


What is the most rewarding part of the job?

DeMasi: The most rewarding part of the job is witnessing the life-changing impact the Muscle Movement Foundation’s programs and services create for affected families in need. Understanding the importance of the accommodations we present, from a first person perspective, allows me to share gratitude with the families we assist and creates an amazing feeling of self-fulfillment.


What are some of the challenges of the job? 

DeMasi: Many nonprofit organizations, and their leaders, may experience “burn out” due to the constant desire to grow the organization and serve individuals in need.


What advice would you give to someone who wants to work in this job or field?

DeMasi: Find purpose in your passion and use it to fuel daily productivity. Build a positive and supportive team. Strategically pace yourself. If you eat the entire pie you’ll most likely get indigestion.


If you would like to know more about the Muscle Movement Foundation: Click Here

Leave a Reply