Muscle Movement Foundation RUN for STRENGTH 5k Is Hitting St.Marks High School

Are you looking for an activity that you can do outside and give back in the process?

Well if you answered yes, we have the perfect option for you  and that is to register for the 2nd annual Muscle Movement Foundation RUN for STRENGTH 5K.

The race is inclusive walk/run which MMF’s ” Muscle Champions” ( survivors of muscle diseases) and their supporters will get a chance to cross off that awesome goal of crossing the finishing line together.

By signing up for this race you will help free families and individuals in the New Castle County and nearby areas with the crippling effects of muscle diseases (  ALS & muscular dystrophy).

The race not only brings fun but it helps enhances MMF’s “Muscle Champions” strength, autonomy, and quality of life.

After the race there will be after party with a live band, refreshments, food, fun and Senator Jack Walsh will distribute awards.

Also Goldey Beacom’s Women’s Basketball team and Wilmington University Men’s Basketball team will be in attendance at the race. According to MMF, many of the athletes will push local “Muscle Champions”  in adaptive running chairs to cross the finish line together.

We will be there covering this inspiring event with all of MMF’s “Muscle Champions” and supporters. Will you?

 

Details:

Location: Saint Mark’s High School, 2501 Pike Creek Rd., Pike Creek, DE US 19808

When:  Saturday, April 7th, 2018

Start Time: 9:00 AM ET

Sign Up Cost: $25

Sign Up: You can sign up individually, join a team or create your own team

Registration ends: 4/7/18 at 9:00am

Link to Register: https://runsignup.com/Race/Register/?raceId=39861&eventId=211725

If you need additional information or questions head to:

https://runsignup.com/Race/DE/Newark/MuscleMovementFoundation

 

 Muscle Movement Press Release About Founder and President of MMF Rob DeMasi Own Journey with Muscle Disease:

Robert DeMasi, is 24 and the founder of Muscle Movement Foundation. He was diagnosed in high school with a muscular neurological disease which is currently in remission. Working out is key to his health. His organization operates 12 months a year and serves anyone who has a disease which falls under a muscular/neurological category. The organization operates on pubic donations and fund raisers.

President, Rob DeMasi, an alumnus of Saint Mark’s High School ’09 was a nationally ranked wrestler, division I recruit, and a three year varsity starting running back during his high school career. Despite his accolades, many were unaware Rob was fighting to win a daily battle against an undiagnosed form of neuromuscular disease.

Difficulty breathing, walking, talking, and swallowing food affected Rob’s ability to complete the school day, and complete practices; nonetheless, he somehow mustered up enough mental fortitude to perform during the games and tournaments.

His games and wrestling matches were followed by extreme muscular fatigue, weakness, and paralysis, which delayed his ability to function days following.

During his senior year of high school, Rob’s symptoms exacerbated to a greater severity level. After 20 days in the hospital virtually paralyzed from head to toe, Rob finally received what he calls his biggest blessing; a diagnosis of myasthenia gravis (MG).

MG is a neuromuscular autoimmune disease that causes fluctuating muscle fatigue and weakness throughout the body. There is currently no cure. After his diagnosis, motivated by his faith and mentality, Rob received a thymectomy (removal of the thymus gland) at Johns Hopkins hospital on 1/29/09.

Physicians collapsed his entire right lung to remove the gland. Despite missing his senior seasons in football and wrestling, just one month after being in the ICU of Johns Hopkins he ran track for Saint Mark’s High School!

Today, he continues to define all odds against his disease and founded the Muscle Movement Fnd. in 2012, which is a 501(c)3 organization that empowers American families who are affected by neuromuscular disease with physical, financial, and emotional accommodations!

 

Pictures from the 1st annual Muscle Movement Foundation RUN for STRENGTH 5K:

This slideshow requires JavaScript.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s